It's difficult for you to hear that you or one of your family members have been diagnosed with CML. You will have many questions – and will be looking for answers. You may feel like you’re alone with your diagnosis, but there are many other people in all parts of the world coping with the disease.
There are several opportunities how you can get involved with other patients sharing your experiences and learning from other perspectives. You can watch videos with other people talking about their personal journey of living with CML or you can get in touch with other patients by sharing your experiences in one of the discussion forums for patients available.
Listen to Dan Sloan striking on a good balance with CML
Dan Sloan, an avid runner, was 42 years old when diagnosed with chronic myeloid leukemia in 2011. After successful treatment, he has gone from being barely able to finish a run to active participation in 5k and 10k races.
There are several blogs and discussion forum’s available on the web where patients can connect with other patients, sharing their experiences and discussing about important issues and the challenges of living with CML. We would like to introduce the following to you:
Access CML Support Group UK Forum
Recent posts on the CML Support Group UK Forum include; recently diagnosed with CML, atypical CML, test results, children with CML and CML and pregnancy.
Access the Leukemia & Lymphoma Society Blood Cancer Discussion Board
Recent posts on the CML Discussion Board include; TKI resistance, 9 month PCR results, CML PH+ blast crisis, what we currently know about TKI discontinuation and journey to TKI cessation.