Welcome to patients with CML

If you, a family member or a friend have recently been diagnosed with chronic myeloid leukemia (CML) you will have many questions. What does this diagnose mean to me or my loved ones? How will this diagnose affect my life in the future? How can I best prepare for the next doctor’s visit? What are the most important questions to ask? How can I learn more about CML? What’s about the latest scientific research being done? How can I learn from other patients?

Information is key. The more you know about CML the better you are prepared for your new life living with CML.

This new section of the iCMLf website will help to provide you with valuable resources to patients with CML and their caregivers. It is designed as a directory that links to and provides reliable and useful patient-friendly information available on other trusted partner websites.

On the following pages you will:

• Learn more about CML
• Familiarize yourself with CML diagnosis & management
• Get involved in doctor-patient dialogue for CML
• Immerse into the world of CML research
• Find important CML meetings for patients
• Learn more about CML in children & young adults
• Hear voices from other CML patients
• Celebrate World CML Day
• Find additional services & interesting links

The page is designed as a living document and will be constantly updated.

Partner organizations

We thank the following partners for providing links to their valuable content helping patients around the world to better understand their diagnosis and to help manage their disease in the best possible way. We all share a common goal: to improve the outcomes for patients with CML globally. 

Visit Cancer.Net

With nearly 40,000 members who are leaders in advancing cancer care; the American Society of Clinical Oncology (ASCO) is the voice of the world’s cancer physicians. ASCO’s patient information website - Cancer.Net (www.cancer.net) - brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them. Well-informed patients are their own best advocates and invaluable partners for physicians. Cancer.Net provides timely, comprehensive information to help patients and families make informed health care decisions.

Visit the CML Advocates Network

The CML Advocates Network, founded in 2007, is both a virtual network and a web platform, now connecting 100 leukemia patient groups from 80 countries. The main objectives of the 'CML Advocates Network' are; to provide a worldwide web directory of CML patient groups, to allow patients to find national support groups in another country; to provide a communications platform for CML patient representatives, in order to share best practice in the field of cancer patient advocacy and to build a knowledge base on patient advocacy. The network is solely run by patient groups, and is maintained without any governmental or industry support.

Visit CML Support Group UK

CML is a patient-led support network for everyone living with CML – whether they are patients themselves, families, friends, clinicians, researchers or anyone with an interest in the condition. The online community is the largest online patient support community for Chronic Myeloid Leukaemia patients, their families and supporters. This community was created to help people living with CML to discover and then access the best possible treatment for them, then move beyond CML to live a full life.

Visit Leukaemia CarE

Leukaemia CARE is a national blood cancer support charity based in UK. The organization is dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.

They support not only patients, but carers and families too who can often carry a lot of the emotional strain when ort that is needed now to help those affected by blood cancer cope during a diagnosis and beyond. 

The Leukemia & Lymphoma Society (LLS)

LLS is the world's largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services. 

Visit the National CML Society

The National CML Society was created by and for patients and their families in order to provide a centralized hub of information for this rare form of leukemia. Founded in 2007 as Carolyn's Hope, this organization quickly spread beyond the confines of a local work to address the real concerns faced by the CML community nationwide. In December 2009, the organization became The National CML Society (NCMLS), serving the needs of the CML community in the United States and its Territories.

Visit PatientPower

Patient Power® was founded by two health communications pioneers, Andrew and Esther Schorr. They previously founded HealthTalk.com, a leader in support for people with chronic illnesses and cancer. Patient Power® is devoted to helping cancer patients or survivors and their family through knowledge, to get the best medicine and return to or maintain good health.