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Doctor-Patient Dialogue

On this section you will get access to useful resources related to the dialogue with your doctor and the management of your treatment. You will find important questions to ask your doctor and can learn about the importance of taking your medicine as prescribed by your doctor. 

 

Doctor-Patient Communication

Talking with your doctor is important to make informed decisions about your treatment and disease management.

Logo Cancer.NetFind questions to ask your doctor

On the website of Cancer.Net you will find some questions to ask your doctor or other members of your health care team, to help you better understand your diagnosis, treatment plan, and overall care. These suggested questions are a starting point to help you learn more about your care and treatment. You are also encouraged to ask additional questions that are important to you. 

Logo CML Support Group UKFind questions for blood test progress updates

The CML Support Group UK provides template questions for early meetings with your treatment team and template questions for blood test progress updates.

 

Adherence

As in other chronic diseases, non-adherence to treatment is a well-known problem in CML. Taking medication exactly as prescribed is not always easy for patients with CML. But it’s important. Adherence, or taking your medication as prescribed by your doctor has a big impact on the effectiveness of your treatment.

Watch an educational video on adherence to CML therapy

This educational video on adherence provided by CML Advocates Network to therapy explains everything you need to know about adherence to therapy.

Logo CML Advocates NetworkGet the CML Adherence App 'CML Today'

The app helps you to support adherence to therapy with tyrosine kinase inhibitors (TKI's) and to track your PCR results. The mobile app is available for free in English, French, Spanish, German, Portuguese, Arabic and Hebrow for use on iOS and Android devices. More languages are to follow soon. The app supports you to:

  • Remind you to take your prescribed CML medication
  • Track your PCR test results and other laboratory parameters
  • Connect with local support groups in your own language

Find the 'CML Today' app in the Apple App Store and in the Google PlayStore

Learn more about adherence to CML therapy from a survey

If you want to learn more about the importance of adherence to therapy in CML you may also want to check for the results of the CML Advocates Network Adherence Survey. The CML Advocates Network has conducted a large international study with 2,546 patients from 79 countries in 12 languages. It aimed to investigate motivations and behavioural patterns of adherence in CML, and subsequently support hematologists and patients to improve adherence and develop adherence tools.

 

Stopping Therapy

There is a discussion going on in the scientific world whether it may be safe or not for some patients with chronic phase chronic myeloid leukemia to stop treatment and to maintain a deep molecular remission afterwards.

Logo PatientPowerHere is some information about stopping treatment safely