Patient groups are uniquely placed to challenge fears and misperceptions that hamper prevention and contribute to late diagnoses, poor treatment and the social isolation of patients. Acting locally but using the Internet they are now campaigning globally. A recent article in "Cancerworld" also features the activities of The Max Foundation. See the article here.
The newly formed International Chronic Myeloid Leukemia Foundation (iCMLf) has launched the Emerging Regions Support and Partnership (ERSAP) program at the annual meeting of the American Society of Hematology (ASH). The ERSAP Preceptorship Project will commence in 2010, providing training, education and support for 30 clinicians in emerging countries each year.
To share and enhance best practice management of CML the iCMLf has opened a discussion forum where experts and interested clinicians can discuss difficult, or interesting CML patient cases. Clinicians submit a brief history of the patient and the case for discussion (no more than 200 words) to the iCMLf web-site coordinator, Jan Geissler. Each case accepted will be published in the discussion forum with a brief response. Further comments, questions and discussion are invited.